Thank you for attending The Palliative Care Conference 2022.
We hope you found the day informative and interesting. Please bookmark or otherwise save this page so that you are able to return.
To build on this event and provide you with more case studies, articles and videos on palliative care, we invite you to register for MyGovCentral.com, Government Events’ online learning resource. You can use this to stay up to date on key trends and challenges in healthcare all year round.
You can view the speaker presentations below:
- Dr Brian Nyatanga, Senior Lecturer, Applied Professional Studies, University of Worcester
- Sue Bottomley, National Head – End of Life and Palliative Care, NHS England
- Dr Rebecca Anderson, Research Associate, Kingston University and Amanda Cresswell, Self-Advocate and Research Assistant, Kingston University
- Gill May, Chief Nurse, Bath and North East Somerset, Swindon and Wiltshire Integrated Care Board
- Dr Tarana Hafiz, End of Life Care Clinical Fellow, Royal College of General Practitioners and Marie Curie
- Helen Meehan, Lead Nurse Palliative and End of Life Care, Royal United Hospitals Bath NHS Foundation Trust
- Ruth Denton, Lead for Palliative Adult Community Services Division, Birmingham Community Health Care NHS Foundation Trust, Rebecca Power, Interim Lead Nurse, Birmingham Community Health Care NHS Foundation Trust and Fiona Dakin, Clinical Nurse Specialist – End of Life & Bereavement Care, University Hospitals Birmingham
You can find recordings of the event sessions here:
Questions for Dr Tarana Hafiz:
We sometimes find it hard to navigate communication between patients and their families during this time. Do you have any advice on this?
Compassion, empathy and honesty is key in these scenarios.
I often reflect the language and words that they have used within my own sentences so that this captures and acknowledges their emotions. Based on their reactions, I would explain honestly in simple language slowly my worries and concerns, directing the discussion towards ‘what matters most’ (slide 14 on the presentation). It may take several discussions to build a relationship and trust, but this in itself is invaluable.
Tarana, how do you think it is most appropriate to support carers during the palliative care process?
In palliative care and General Practice, we often take the family on this journey with us, which does involve the carers. Our subconscious minds will already be supporting them, by listening, showing kindness and empathy, our natural human instinct. We often forget that our patient and our carers are often within a much larger community (not just healthcare, slide 5), they may already have existing support in place from their family members, neighbour, friends, religious groups etc.
If we do notice during this process that they need additional support then we would be encouraging them to speak with their GP (who can support by referring for counselling, medications, sick notes etc). For family members under 18, your local community palliative care team may have a patient family support team who would be able to provide support for our young carers. There are also many charities that are able to provide support, provide leaflets etc.
It is often a collaborative effort within the community that supports our carers.
Are the daffodil standard available as a free resource?
All the resources used on the presentation are available for free. The links are also on the last slide of my presentation.
I have attached the link for this on the Royal College of General Practitioners.